To Whom It May Concern,
I hope this letter finds you well.
I wanted to explain the pain situation I have been in for the last 2.5 years in a letter rather than just the form.
As I have added to the form, I have been suffering from general body pain, which is more persistent in the lower back area, but radiates to various areas of my body, usually affecting the right side of the body.
Every day since my condition started, I suffer from an intense constant lower back pain and milder but also constant pain and discomfort on my right shoulder, around the shoulder blade.
Due to this condition I don't sleep well. I go to bed at around 8;00pm (as often as possible) and most days, even if I am in bed for over 10 hours, I wake up not rested at all. When I finally fall asleep, I wake every time I change posture, due to the pain. This situation has caused considerable fatigue and I am exhausted throughout the day.
Apart from that constant pain, with the change of weather, my hands and knees get very stiff, and it is also painful, this makes it hard to use them, especially on cooler days, when this happens it is impossible for me to even to handwrite or type.
I have tried many different medications, such as pain relief or mussels relaxant, antidepressant, none of them worked. Therefore, there hasn’t been an improvement in my condition. I have appointments with a number of specialists. The rheumatologist couldn't justify the pain considering the results of my many scans or blood tests. Professor Kirk Levins from the pain clinic diagnosed me with a generalised pain disorder, also he did a rhizotomy to me that brought no improvement nor relief to my pain.
For the last two years, I have tried treatments such as physiotherapy, swimming, pilates, stretching exercises, neither of them helped. On the contrary, they have increased the pain while practicing, therefore I had to stop any physical activity or therapy.
I have also joined Chronic Pain Ireland, and follow a few of their seminars for learning how to live with chronic pain. This is the only thing that has helped, but not in a physical meaning, just for the anxiety and psychological impact that this physical condition has had on my life and my mind
Besides the generalised pain disorder, I also suffer from haemorrhoids (Since 2019), an anal fissure (for about a year), IBS and diverticulitis.
Those have also been unsuccessfully treated. I had an operation to remove the haemorrhoids in 2020, but the doctor only removed the bigger one (a golf ball sized), leaving the smaller one (the size of a gellybean, which still is very painful) as it would otherwise affect the elasticity of my anus.
I had injections to reduce it, which only worked partially. Fortunately, this condition can be treated with painkillers such as ibuprofen helping to mild down these symptoms. Unfortunately, I cannot be on this medication for long periods of time. I have tried many other treatments, such as various types of suppositories and ointments, but those have never worked.
On top of all I have mentioned above, due to the IBS condition, I often suffer from diarrhoea, which means that some days I cannot make it on time to the bathroom, and I need to take a shower and have a change of clothes handy. This can unfortunately happen in the middle of the day but thankfully not very often.
All those conditions, but especially the ones related to pain, have affected my capacity to focus on tasks, even simple ones, and have hugely restricted my physical activity, which for many days is up to nothing.
I can emphasise enough how important it is for me, and my family, to be able to access the disability allowances as unfortunately, I am losing hopes of improvement on my condition.
Kind regards, Marina Jorquera Rodriguez
